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<p style="text-align:justify; margin-bottom:11px"><span style="font-size:11pt"><span style="line-height:107%"><span style="font-family:Calibri,sans-serif"><span style="font-size:12.0pt"><span style="line-height:107%"><span style="letter-spacing:.4pt">Englobada en el marco de la atención integral, la información compartida por profesionales de diferentes áreas se convirtió en un elemento fundamental de nuestro modelo de intervención con pacientes y familiares. </span></span></span><span style="font-size:12.0pt"><span style="line-height:107%">F</span></span><span style="font-size:12.0pt"><span style="line-height:107%"><span style="letter-spacing:.4pt">ue entonces cuando se decidió extender la escuela a todos los programas del área de Salud y del área de Discapacidad de nuestro Hospital, para acompañar a los potenciales cuidadores. </span></span></span></span></span></span></p>\r\n
\r\n
<p style="margin-bottom:10px; text-align:justify"><span style="font-size:11pt"><span style="background:white"><span style="line-height:normal"><span style="font-family:Calibri,sans-serif"><span style="font-size:12.0pt"><span style="color:black">Somos conscientes de que el alivio del sufrimiento del paciente y de la familia no es tarea sencilla, pero </span></span><span style="font-size:12.0pt"><span style="color:black"><span style="letter-spacing:.4pt">está demostrado que dar esta orientación y asesoramiento, empodera a las familias y cuidadores, y además de ser un apoyo emocional, les permite ser proactivos en los cuidados </span></span></span><span style="font-size:12.0pt"><span style="color:black"><span style="letter-spacing:.4pt">necesarios para la mejora de los pacientes, tanto durante su ingreso como cuando reciben el alta.</span></span></span></span></span></span></span></p>\r\n
\r\n
<p style="text-align:justify; margin-bottom:11px"><span style="font-size:11pt"><span style="background:white"><span style="line-height:normal"><span style="font-family:Calibri,sans-serif"><span style="font-size:12.0pt"><span style="color:black"><span style="letter-spacing:.4pt">Tras diez años de experiencia, nos enfrentamos al gran reto de atender a las familias en el contexto de una pandemia y un confinamiento que impedía la presencialidad de las mismas en el Hospital, y provocaba una mayor necesidad de información y atención a las familias. Ante esta situación, optamos por adaptar el anterior modelo de sesión presencial por el modelo online, con “webinars” que nos seguían permitiendo estar al lado de las familias. </span></span></span></span></span></span></span></p>\r\n
\r\n
<p style="margin-bottom:10px; text-align:justify"><span style="font-size:11pt"><span style="background:white"><span style="line-height:normal"><span style="font-family:Calibri,sans-serif"><span style="font-size:12.0pt"><span style="color:black"><span style="letter-spacing:.4pt">Tras la reapertura del hospital a familias en 2021, se retomó el programa con fuerza conscientes de su utilidad, y decidimos centrarnos especialmente en las familias de los pacientes de neurorrehabilitación, ya que generalmente son las que se enfrentan a un cambio de vida más drástico e inesperado. </span></span></span></span></span></span></span></p>\r\n
\r\n
<p style="text-align:justify; margin-bottom:11px"><span style="font-size:11pt"><span style="line-height:107%"><span style="font-family:Calibri,sans-serif"><span style="font-size:12.0pt"><span style="line-height:107%"><span style="letter-spacing:.4pt">De este modo, se pusieron en marcha las sesiones trasversales mensuales en las que cuatro profesionales – un fisioterapeuta, un logopeda, un terapeuta ocupacional y una enfermera—comparten nociones básicas de cuidados y consejos para el manejo de estos pacientes. Estas sesiones permiten a los asistentes conocer un poco más las lesiones neurológicas y aprender </span></span></span><span style="font-size:12.0pt"><span style="line-height:107%">a cuidar con seguridad a los pacientes, así como estimularles de forma precoz, global e intensiva. Además de estos consejos sobre cuidados, en estas sesiones las familias también reciben información por parte de los profesionales del </span></span><span style="font-size:12.0pt"><span style="line-height:107%"><span style="letter-spacing:.4pt">servicio de atención espiritual, trabajadores sociales y profesionales del servicio atención al usuario, para que tengan una visión global de las necesidades del paciente y su entorno. Para finalizar las sesiones se abre un turno de preguntas donde los asistentes pueden plantear sus inquietudes; algo que sirve para reducir la sobrecarga del cuidador, ajustar expectativas y saciar la necesidad de comunicación con el equipo que atiende a su familiar. </span></span></span></span></span></span></p>\r\n
\r\n
<p style="text-align:justify; margin-bottom:11px"><span style="font-size:11pt"><span style="background:white"><span style="line-height:normal"><span style="font-family:Calibri,sans-serif"><span style="font-size:12.0pt"><span style="color:black"><span style="letter-spacing:.4pt">Desde que se retomó el programa, en 2021, más de 350 familias han asistido a nuestras sesiones presenciales mensuales y el programa ha sido muy bien valorado: el 88% de las familias considera necesaria este programa de apoyo, el 85% valora el programa y el horario como adecuados, y más del 60% de los asistentes solicitan recibir más de una sesión durante su estancia.</span></span></span></span></span></span></span></p>\r\n
\r\n
<p style="text-align:justify; margin-bottom:11px"><span style="font-size:11pt"><span style="background:white"><span style="line-height:normal"><span style="font-family:Calibri,sans-serif"><span style="font-size:12.0pt"><span style="color:black"><span style="letter-spacing:.4pt">Sin embargo, las familias reclamaban poder contar con formaciones específicas y decidimos dar respuesta a esa necesidad.</span></span></span><span style="font-size:12.0pt"><span style="color:black"><span style="letter-spacing:.4pt"> Por ahora se han ofrecido 5 talleres prácticos de 45 minutos cada uno, impartidos por profesionales: Actividades de la Vida Diaria (Terapia Ocupacional), Lenguaje y Deglución/Disfagia (Logopedia), Transferencias y Marcha (Fisioterapia), Adaptación del Domicilio y Ayudas Técnicas para el Día a Día (Terapia Ocupacional) y Control de las Emociones (Centro de Atención Integral al Duelo).</span></span></span></span></span></span></span></p>\r\n
\r\n
<p style="text-align:justify; margin-bottom:11px"><span style="font-size:11pt"><span style="background:white"><span style="line-height:normal"><span style="font-family:Calibri,sans-serif"><span style="font-size:12.0pt"><span style="color:black"><span style="letter-spacing:.4pt">En el resto de áreas y programas del Hospital la Escuela de Familias se ha ido desarrollando ajustándose a las diferentes necesidades: en el área de Atención Temprana y Rehabilitación Infantil los profesionales han realizando talleres monográficos sobre temas de interés propuestos por los terapeutas o las propias familias; mientras que en la unidad de Daño Cerebral Severo Crónico las sesiones tienen un formato grupal adaptado a las especiales necesidades de estas familias, que se enfrentan a diagnósticos </span></span></span><span style="font-size:12.0pt"><span style="color:black">como </span></span><span style="font-size:12.0pt"><span style="color:black"><span style="letter-spacing:.4pt">el </span></span></span><span style="font-size:12.0pt"><span style="color:black">síndrome de vigilia sin respuesta y el estado de mínima consciencia. </span></span></span></span></span></span></p>\r\n
\r\n
<p style="margin-bottom:10px; text-align:justify"><span style="font-size:11pt"><span style="background:white"><span style="line-height:normal"><span style="font-family:Calibri,sans-serif"><span style="font-size:12.0pt"><span style="color:black"><span style="letter-spacing:.4pt">Uno de los principales objetivos de la Escuela de Familias es la difusión del conocimiento para mejorar la calidad de vida de nuestros pacientes y de su entorno, por ello, todos los folletos, guías y vídeos que se realizan para las diferentes Escuelas de Familias quedan publicados en el apartado </span></span></span><span style="color:black"><a href="https://fundacioninstitutosanjose.com/escuela-de-familias/" style="color:#0563c1; text-decoration:underline"><span style="font-size:12.0pt"><span style="letter-spacing:.4pt">Recursos y Materiales</span></span></a></span><span style="font-size:12.0pt"><span style="color:black"><span style="letter-spacing:.4pt"> de nuestra web. Así, los pacientes y familias pueden acceder a numerosos vídeos con indicaciones del área de Rehabilitación y Enfermería, y varias guías de consulta que les ayudarán por ejemplo a elegir una silla de ruedas, o el juguete adecuado para un niño con necesidades especiales. </span></span></span></span></span></span></span></p>\r\n
\r\n
<p style="margin-bottom:10px; text-align:justify"><span style="font-size:11pt"><span style="background:white"><span style="line-height:normal"><span style="font-family:Calibri,sans-serif"><span style="font-size:12.0pt"><span style="color:black"><span style="letter-spacing:.4pt">Además, contamos con más de 15 </span></span></span><span style="color:black"><a href="https://www.youtube.com/watch?v=gFkS9yLAnp0&list=PL1Ist1RUS9rFIqMrIaNlnpEG_BBA6_ZhB" style="color:#0563c1; text-decoration:underline"><span style="font-size:12.0pt"><span style="color:black"><span style="letter-spacing:.4pt">testimonios de rehabilitación de los propios pacientes</span></span></span></a></span><span style="font-size:12.0pt"><span style="color:black"><span style="letter-spacing:.4pt"> que pueden ayudar a motivar a otros pacientes y familias que estén viviendo situaciones similares. Todo un abanico de recursos que desplegamos para seguir acompañando a pacientes y familiares en sus procesos individuales de rehabilitación. </span></span></span></span></span></span></span></p>\r\n
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